Fleming FundA UK aid programme, helping low and middle income countries tackle antimicrobial resistance
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Geoffrey Boulton lays out the case for sharing scientific data, and advises that the UK's Royal Society has established a working group to examine the implementation issues and to make recommendations.
Collaboration which allows protocol build, data collection and data sharing via free and open access web support.
Elizabeth Warren addresses the policy, privacy, and practical issues affecting data sharing in clinical trails.
Brigham and Women's Hospital–Harvard University's Multi-Regional Clinical Trials Center is designing a platform to link existing data-sharing platforms and communities and host data from investigators who want to share data but lack the resources to do so.
This article asks the question: how — and how much — to share, where and in what format data should be stored and accessed, and how to protect the privacy of the trial participants.
Cancer Research UK highlights some key initiatives and repositories which may provide tools and guidance for data sharing in the academic clinical trial field.
The University of Carolina offers a free eLearning course about data management and sharing.
The two-day symposium enabled an international group to meet and share experiences of the TwiCs design and to discuss plans for future research.
The University of Oxford's tips for data management planning.
The ACDM represents professionals working in the management of clinical data
The Bill and Melinda Gates foundation answers questions about their open access policy.
The ICMJE introduces it's vsion for a global research community in which sharing deidentified data becomes the norm.
This study assess the uptake of the rheumatoid arthritis core outcome set using a new assessment method of calculating uptake from data in clinical trial registry entries.
Thid guide offers good practice principles for sharing data from clinical trails
Guidelines for MRC research and management of data.
This study looks at the commitments made by companies to transparency of trials.
This article describes the heterogeneous RDR landscape. Further, the article outlines the features of re3data.org, and shows how this registry helps to identify appropriate repositories for storage and search of research data.
This article argues in favor of more widespread availability of data from clinical research.
This study analyses the solutions offered by generalist scientific data repositories.
The Yale Open Data Access (YODA) Project is one of several pioneering data-sharing models in use. It uses a “trusted intermediary” approach, in which an independent partner provides support, accountability, fairness, and transparency.
ACCESS CV proposes a secure method of sharing sensitive patient data that balances the legitimate desire of the scientific community for data access with the responsibility to ensure high-quality analyses and protection of patients’ expectation of privacy.
Lisa Rosenbaum looks at both sides of the data sharing discussion.
Although some researchers remain wary about sharing data, recent policies and proposals mean that data sharing, in one form or another, is inevitable.
Sharing of data from clinical trials benefits patients by enabling new discoveries, meta-analyses, and confirmation of published results.
The International Committee of Medical Journal Editors (ICMJE) believes that there is an ethical obligation to responsibly share data generated by interventional clinical trials.
Motivational interviewing (MI) is a client-centred method of intervention focused on enhancing intrinsic motivation and behaviour change. This article looks at MI in adults in primary care.
This is the first study to document the longer-term effects of adapted motivational interviewing, delivered in the primary care setting, on BMI, physical activity and related CVD risk factors.
This study determines how well authors comply with data sharing policies in Clinical Research Trails.
Iain Hrynaszkiewicz and colleagues propose a minimum standard for de-identifying datasets to ensure patient privacy when sharing clinical research data.
The double-edged sword of open access to research data.
This e-book covers benefits, barriers and models for data sharing.
The clinical research community is at an important crossroads about sharing data.
BioSharing harnesses community curation to collate and cross-reference resources across the life sciences from around the world.
The ICMJ gives its vision for a global research community in which sharing de-identified data becomes the norm.
Data sharing is now a major theme in clinical research. However, effective, ethical sharing of clinical research data requires trust: research subjects must trust investigators to preserve their privacy, investigators must trust each other to give credit where credit is due, and the integrity of the entire research enterprise must be trusted by all.
The Multi-Regional Clinical Trials Center of Brigham and Women's Hospital and Harvard (MRCT) aims to improve the integrity, safety, and rigor of global clinical trials.
Barbara Bierer presents changes in data sharing, and gives solutions to challenges facing the feild.
Access to large, late-phase, cancer-trial data sets has the potential to transform cancer research by optimizing research efficiency and accelerating progress toward meaningful improvements in cancer care.
This article looks at the development of software to enhance the integration between patient-care practice and medical research.
Data sharing is as an expanding initiative for enhancing trust in the clinical research enterprise
A new tool for the capture and conversion of clinical data is introduced as a way to encourage reuse of data and to reduce workloads in new studies.
This article assesses the use of the BioLINCC by clinical researchers.
This article looks at how data sharing could change and challenge design, conduct, and reporting of systematic reviews and meta-analyses for Clinical Research, as well as it's impact on those involved in evidence synthesis.
Statisticians are ambassadors for data sharing and are central to its success; this article looks at how the role is changing with new technologies and trends for data transparency.
The article poses the question: How would data sharing work best?
The devolpment of a data sharing database makes it easier to harmonize and manage for data mining.
In this paper, we review several aspects of the privacy-related problems associated with data sharing for clinical research from technical and policy perspectives.
Basing Informed Decisions on the Totality of the Evidence
This article describes a web appliaction for data sharing for clinical research.
This study investigates these differences in experiences with and perceptions about sharing data, as well as barriers to sharing among clinical and basic science researchers.
This article looks at the thriving interest in open science and the inevitable widespread adoption of data, and how the two can be managed.
This article looks at the complex issues behind data sharing in clinical trials.
This article looks at the interaction in the USA between sharing data from clinical trails and the Privacy Rule adopted under the Health Insurance Portability and Accountability Act.
This article proposes a controlled secure aggregation protocol to secure both privacy and accuracy when researchers outsource their clinical research data for sharing
Article on the devolpment of Imaging biomarkers and the need for data sharing for this.
The objective of this paper is to present the IMPACT Observatory as well as share some of its preliminary findings
The question at the center of the open-science efforts for clinical trials should not be whether data should be shared, but rather how we can usher in responsible methods for doing so.
A review into new molecular markers potentially able to ameliorate the prognosis in thyriod cancer patients.
An article arguing that full transparency of clinical trial data is an essential prerequisite to achieving research integrity.
The Medical Research Council's policy on data sharing.
This article discusses the results of a systematic review and multisite qualitative study of key stakeholders’ perspectives on best practices in ethical data sharing in low- and middle-income settings.
In this paper, we share our experiences establishing data management systems and data-sharing infrastructure including a data-sharing policy, data access committee and related procedures.
The Journal seeks to show it's commitment to data sharing in the setting of clinical trials.
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